When Nula’s husband James, a British documentary filmmaker, becomes forgetful they put it down to the stress of his work. But his behavior becomes more erratic and inexplicable, and he is eventually diagnosed as suffering from Picks Disease, an early onset and aggressive form of dementia. Suddenly their lives change from comfortable middle-class creatives through inexplicable behaviour, the shock of diagnosis, coping with the ongoing illness, not coping with the illness, to the indignities of care home life. <br<br> The Longest Farewell is a moving description of James utter mental and physical deterioration, and the effect that it had both on him and on the people from whom he was involuntarily retreating, particularly Nula. Her life is completely taken over by James illness: her frustration at trying to cope, her guilt at having to hand over his care to professionals in England, are just part of her at times harrowing story.
With James in care and left with seemingly little to do but wait for his death, Nula meets Bonnie, another resident at the care home suffering from the same condition. In turn she meets Bonnie’s husband, the broadcaster John Suchet and the similarity of their positions becomes a bond between them. After the deaths of James and Bonnie, and some guilt-induced false starts, Nula’s story takes a bitter-sweet turn: they become partners, and eventually marry. The Longest Farewell is a heartfelt yet inspiring account of dealing with dementia, and of unexpectedly finding a happy ending.
Nula Suchet was born in Ireland, part of a large family. After a difficult early life she became an interior designer who worked internationally in the UK, Europe and the US. Now retired, she lives in London with her husband, the broadcaster John Suchet, who she met in the care home where their spouses were being cared for with dementia. Her book, The Longest Farewell, on dealing with her husband’s dementia and the heartbreak that came with it is available now.
This is my second time of reading a book that dealt with this disease. It is sad to read and learn that there really isn’t much a love one can do except just to be there for their loved one. I am not sure how I would handle this, or even if I could do all that she did for her husband before she had to get outside help.
There were times that this book had me in tears. I am glad that Nula met another person going through the same as her and that they became friends and eventually finding happiness again in her life. This was a great book. Thank you to Kelly at Love Books Tours https://lovebooksgroup.com for the opportunity to take part in this blog tour, for the promotional material and a free copy of the book. This is my honest review.